ER/Hospital Vist

I got a text from Carson's daycare provider on Thursday afternoon saying that he wasn't feeling the best, but wasn't running a fever.  When I picked him up, he was perky and playing outside.  I got home and he started to moan and cry and said that his tummy hurt.  He had a low temp, so I give him so water to sip on.  He calmed down and watched some Blues Clues and relaxed on the couch.  About an hour later, he started the crying again as we were getting ready to eat.

He never calmed down even though he had some heat on his tummy and cool on his head.  I ended up taking him to the ER around 9:30PM.  He got an x-ray which showed a blockage in his intestines.  They gave him some medicine to prevent him from throwing up (which he never did) and some morphine for the pain.

At 3AM, he got a CT scan to check on the blockage in more depth.  It was gone thankfully or we were being admitted and transferred to Children's for surgery.  I was given the choice of taking him home and trying to deal with the pain or admitting him for some observations.  I choice to admit him.  We got settled in our room in the hospital about 4:30AM.  He was given two IVs to keep him hydrated. 

They took all of his meds so that they could process them in the pharmacy, which ended up being horrible.  It took forever for them to get them back and I finally fed him some of the meds I kept in my purse because he was hungry.  He finally was approved for solids around 3PM.  He wolfed down his macaroni and cheese and chips in record time.  He were discharged at 6PM since he was eating and keeping food down.

And now today, you can see he feels better...

Playing at the Park

It has been so nice lately.  Carson and I stopped at the neighborhood park on the way home for work the other day.  He LOVES the big twisty slide.

Reading Buddy

Carson loves his baby.  Here he is reading with her.  He was making sure she was on the right page with him!

Throat Cultures

At every CF clinic visit, a nurse will swab the back of Carson's throat. It takes about a week to get the results back to see if he has cultured any nasty bugs.  He's been pretty clean in the past.  He cultured staph once, but we were able to clear it up with antibiotics by his next appointment.

In July, Carson cultured a really nasty bug for CFers--pseudomonas.  This has been found to lead to lung function deterioration.  I was really upset when we got the call about it.  Most CFers will culture it at some point, but I didn't want it to be this early.  Carson was put on a 28-day regimine of TOBI, which is an super expensive ($1,600/month) inhaled antibiotic as well as an oral antibiotic. 

We had to wait a week after he completed his medication to get another throat culture and then another week to get the results.  The results came back on Monday and Carson got rid of it!  But...he has now cultured MRSA (which is a drug-resistant form of staph).  This poor guy can't catch a break.  He was put on an oral antibiotic and a cream we put up his nose twice a day.  I got another call on Thursday that they would like to put him on a second antibiotic now.  The main antibiotic that they use for MRSA is bactrim, which Carson is allergic to.  After the doctors did more research, they decided to add this additional med to help make up for the one he can't take.

We'll know if he gets rid of it after his October clinic visit.  If he doesn't, they will just consider it part of his normal flora (bugs he just has).  They will also not treat it again unless he's showing some symptoms.  As of right now, you'd never know that he had pseudomonas or MRSA.

Zoo

Emily and I took Carson to the Lincoln's Children Zoo this morning.  Since it was going to be a bit cooler today, I thought it would be a great time to go.  Carson was excited, but didn't want to look at anything for more than a second.  He wanted to see the donkeys--he thought that the horses and goats were donkeys. 

We ended our short trip on the train.  He loved it!

Carson Loves to Read

Carson loves his books.  Here he reads a book about animals.  Sadly, he thinks the zebra is a horse.

This is Carson reading Where's Spot?  He has found Spot in the basket and is very excited.  By the way, he's read this book a million times, but still gets excited about it.

Fun in the Sun

I bought Carson a new swimming pool this summer.  The first day, he would only stand in it and he absolutely hated sliding into it.  Fast forward to a few days later, he will now jump and and slide on in!

Day 1:

 

Day 2: