January CF Clinic Visit

I took Carson to his CF appointment on Thursday.  It was his annual day of testing--x-ray, blood draw, urine test, and throat swab.  Because he previously had MRSA and he was clear at the last appointment, they did three follow up swabs-nose, belly button, and arm pits.  This doesn't hurt a bit, but Carson thought that the world was going to end.  Good thing that I brought Emily along with me to help hold him down.

His x-ray looked good and he sounded great.  Even though he only gain 8 ounces in three months, they were okay with his growth because he was still following the growth curve.  I swear he weighed more than that, but he must be getting more compact.  He was officially 32 lbs. 10 oz, and 37.75 inches tall.  His height/weight ratio was 53% (goal is >50%).  We'll see if he changes his ways when he goes in for his three year check up in a few weeks.

Because Carson has been having a hard time eating lately (maybe because of the craziness of the holidays, we don't know...), they are having him cut back on the antihistamine that he was taking as an appetite stimulant.  He will now be on it for three weeks and off one week.  We'll see if that helps.  I'm supposed to let them know in a month.  If there isn't much progress, he will get a higher dosage. 

Carson the Calmer

I didn't do the best last year to keep up with our blog.  I promise that I'll post more this year. 

I thought that I would share a silly Carson story from Christmas break.  The other day, Carson was trying to carry his large jungle/rainforest playset (see video below) through the kitchen.  He tripped, fell, and started screaming.  Then I heard him say quietly, "Shhhhhh.  It's okay, Carson.  You're fine."  I was super confused, but kept on listening.  Then Carson went to the freezer and got out one of his boo-boo ice packs and put it on his face.  About another minute later, he put it back and continued playing like nothing happened. 

If only everything injury was that easy!

Great Strides 2013

I know that you all are as excited as I am about this year's walk.  The Lincoln Great Strides for Cystic Fibrosis walk is May 18th at 10AM (registration at 9AM) at Holmes Lake.

We had a great turn out last year.  Our team came a little bit short of our goal.  Let's make sure to blow past it this year!

Click the link on the right side of the page to either register for the walk or to donate.  Every little bit helps make CF stand for "Cure Found."

Christmas 2012

So it's been a while since we've posted.  Carson had a wonderful Christmas.  He was pretty tired after all of his adventures, but never too tired to play!  A few of his favorite gifts:

Construction/Work Bench:

 Dr. Carson checks out Mario.  He was thankfully okay.

 

Animals that make sounds in the jungle.  Uncle Matt really liked this one too!

Halloween 2012

Here is Carson as a walrus.  He didn't want to sit still so this is the best that we could come up with.

Good News

We got the results from Carson's latest throat culture.  He's MRSA free!!!  Two oral antibiotics and one topical one and it's gone.  We are so excited. 

WOW!

Despite being on antibiotics for over a month and an ER visit, Carson had an amazing CF appointment today.  He was 32 lbs. 3 oz. (a gain of 3 lbs. in three months) and 37.01 inches tall.  His height to weight ratio, which should be over 50%, was 71% and he had a BMI of 62% (which should also be over 50%).

We have to wait about a week to see if he got rid of his MRSA.  If not, they won't treat it and it will just be considered part of his normal flora in his lungs.